Helpful Website Links

Please see below for helpful website links.

For More information on Congenital Heart Disease

American Heart Association and Congenital Heart Defects
Heart Center Encyclopedia from Cincinnati Children’s Hospital
The Children’s Heart Foundation
Johns Hopkins University of Congenital Heart Defects, Testing & Procedures
MedlinePlus and Congenital Heart Disease
Adult Congenital Heart Disease

Agencies & Support Groups for Families with Pediatric Heart Disease

HLHS Support Group
Kids with Heart National Association for Children’s Heart Disorders, Inc.

Long QT Syndrome

SADS Foundation

Medication Lists

CredibleMeds.org

Covid-19 Information

Centers for Disease Control- CDC
California Department of Public Health
LA County Department of Public Health
Ventura County Department of Public Health

Types of Arrhythmias in Children

The American Heart Foundation
The Cleveland Clinic
Children’s Cardiomyopathy Foundation
Kawasaki Disease Foundation
Little Hearts
National Down Syndrome Society
National Marfan Foundation
Velocardiofacial and DiGeorge Syndromes

Camps Designed for Children with Heart Disease

Camp del Corazon
Camp Taylor

Research Trials for Children with Heart Disease

Pediatric Heart Network

Quality of Life Issues

Children with Chronic Conditions
Pain and your Baby
Pain and Your Child or Teen